Kat organised a research workshop with Prof Gaia Scerif hosted at St. Catherine’s College (University of Oxford) bringing together UK researchers interested in fragile X syndrome to share expertise, discuss current work and form future collaborations. There were a range of interesting sessions, including a talk by Prof Jonathan Herring on the law and practice of gaining consent from people with learning disabilities, quick fire updates on current research from UCL, University of Oxford, University of Surrey, University of Warwick and University of Edinburgh. We were also lucky enough to have a brilliant session with two young people who told us all about what it is like to have fragile X syndrome. Some family members and carers of those with fragile X syndrome joined us online and shared their ideas on how families and researchers can collaborate to shape future research.